Being a kinship carer can be challenging. When a child you care for has a disability or special educational needs, you may need extra support.
Understand how schools should support your child when they have a special educational need (SEN) or disability.
This advice applies to: England
We’re running a number of workshops on supporting children with special educational needs and disabilities (SEND), both in person and online. These are free to join and aimed at kinship carers living in England.
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47% of kinship children have a special educational need or disability
SEND stands for special educational needs and disabilities. You might also hear special educational needs (SEN).
The government’s SEND Code of Practice covers the support local authorities must provide children with SEN and disabilities.
It says that a child has a special educational need if they have:
Special educational needs fall into 4 categories:
Disabled children and young people
The Equality Act 2010 explains that a disability is a physical or mental impairment which has a long-term and substantial adverse effect on someone’s ability to carry out normal day-to-day activities.
A disabled child or young person may not have a special educational need, but if their disability affects their school life, then the school must support their needs.
The government’s SEND Code of Practice sets out guidelines for schools and educational settings, so children with SEND get the best educational outcomes.
It states that schools should:
Children in kinship care have often experienced trauma. This can lead to social, emotional or mental health difficulties, for example attachment disorder or anxiety.
It’s important to remember that social, emotional and mental health needs are special educational needs. If trauma, attachment disorder or anxiety are affecting your child’s time in school, they should get SEN support at school.
Read our guides on trauma, attachment and anxiety to help you identify when your kinship child is struggling. You can also book onto our free workshop on understanding trauma and attachment.
The school should also be able to identify SEN using assessments and classroom practice. They should tell you any support they’re considering if they think your kinship child has special educational needs.
Your local authority’s Special Educational Needs and Disabilities Information Advice and Support Service (SENDIASS) supports families of children and young people with special educational needs or disabilities. They are a free, confidential and impartial service. Search “SENDIASS” and your local authority area online to find their details.
Your local authority should also have a SEND local offer on their website. It has information about support and facilities that you can access in your area for children and young people with special educational needs and disabilities. Search “SEND local offer” and your local authority online to find out more.
Your child doesn’t need a formal medical diagnosis to get SEN support.
When you or your child’s school recognise that your child may need SEN support, schools should use the “assess, plan, do, review” process.
You need to have parental responsibility to act on concerns you have about your kinship child’s needs.
If you are:
you don’t have parental responsibility for your kinship child. Informal kinship carers and private foster carers need to work with their child’s birth parents to come to any decisions about your child’s needs. Kinship foster carers need to work with their child’s social worker.
If you have a special guardianship order (SGO), you have overriding parental responsibility and can talk to the school. It’s still best to involve your child’s birth parents in any conversations where it’s safe to do so.
If you have a child arrangements order (CAO), you share parental responsibility with your child’s birth parents so must talk to the school together.
If you have parental responsibility and are raising your concerns with the school, speak to your child’s teacher or the SENCO. You need to explain why you think your child needs support and what behaviours they are showing that affect their school life.
If the school identify a need for support, the teacher should work with the SENCO to analyse your child’s needs. They should use teacher assessments and their own experiences of teaching your child as evidence. They may get specialists to help them assess your child, for example an educational psychologist.
The school should speak to you – letting you know what they’ve identified and what actions they want to take. They should also tell any other teachers that work with your child.
The teacher will work with the SENCO to create a SEN support plan – schools may also call this an individual learning plan (ILP). It can include reasonable adjustments that they’ll make in the school day to support your child. They should involve you and get your input, then give you a copy when it’s ready.
They should follow through with any actions or strategies agreed in the plan to give your child the support they need.
The school should review the SEN support plan with you, looking at your kinship child’s outcomes and their progress towards them. Reviews will usually be termly, so about 3 times a year.
These meetings should be:
When the school reviews this progress, make sure they take both you and your child’s views into account.
If you have concerns, or feel things aren’t progressing as they should, speak to the school’s Special Educational Needs Co-ordinator (SENCO). They are responsible for the school’s SEN policy. Depending on the type of kinship carer you are, you may also get support from your virtual school.
Schools may also call SEN support plans:
If you’re unsure of the term your child’s school uses, speak to them directly.
SEN support plans detail reasonable adjustments the school has in place for a child, so they can access the curriculum and school facilities/services the same as any other child. It should describe:
‘Reasonable adjustments’ are positive steps or interventions schools can put in place for children with disabilities. Schools must make adjustments so those children can access school facilities in the same way as any other pupil.
Reasonable adjustments could include:
Tell the school what adjustments you think might help, and what works at home. You can use the review meeting to talk about whether they’re working for your child.
If the school can’t meet your child’s needs, they should ask for an education, health and care (EHC) needs assessment. The assessment can lead to an education, health and care plan (called an “EHC plan” or “EHCP”).
Here are some questions you can ask the school about their SEND support.
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